Further reading

You may find the following resources helpful for further reading on the topic of thalassemia.

+ Public-friendly resources

• Thalassaemia International Federation (TIF): thalassaemia.org.cy
• UK Thalassaemia Society (UKTS): ukts.org
• Patient Info: patient.info/allergies-blood-immune/thalassaemia-leaflet#nav-3
• WebMD: webmd.com/a-to-z-guides/what-is-thalassemia#1
• National Health Service (NHS), UK: nhs.uk/conditions/Thalassaemia/
• CDC Centers for Disease Control and Prevention: cdc.gov/ncbddd/thalassemia/facts.html
• National Human Genome Research Institute (NHGRI): genome.gov/Genetic-Disorders/Thalassemia

+ Clinical resources

• All clinical trials: ClinicalTrials.gov
• Cappellini M, Cohen A, Porter J, et al. Guidelines for the Management of Transfusion-Dependent Thalassemia 2014: researchgate.net/profile/Robert_Yamashita/publication/267451177_Psychological_Support/links/544fceae0cf24e8f7374a816.pdf
• Cappellini M, Cohen A, Eleftheriou A, et al. Guidelines for the Clinical Management of Thalassemia 2008, NCBI Bookshelf: ncbi.nlm.nih.gov/books/NBK173968/
• Galanello R, Origa R, Beta-thalassemia. Orphanet Journal of Rare Diseases, 2010: ojrd.biomedcentral.com/articles/10.1186/1750-1172-5-11
• Behdani F, Badiee Z, Hebrani P, et al. Psychological aspects in children and adolescents with major thalassemia: a case-control study, Iranian Journal of Pediatrics, 2015: ncbi.nlm.nih.gov/pmc/articles/PMC4505986/

< Practical tips for people living with thalassemia