Myelodysplastic Syndromes (MDS)

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Myelodysplastic Syndromes (MDS)

We are committed to transforming outcomes for people living with MDS and other iron-loading anemias.

To support better understanding of the condition, we have developed a short ‘eBook’ that you can find here. There are a number of different types of MDS and this eBook focuses on the lower risk types. It provides an introduction to some of the key topics relating to MDS, including what causes it, how it is diagnosed and current treatment options. It also describes the reality of living with lower risk types of MDS.

Unmet Medical Need

“Hepcidin is to iron like insulin is to glucose. Just like people who have diabetes can suffer from lack of insulin, people who have too much iron in the body don’t make enough hepcidin.” - Professor Tomas Ganz, MD, PhD

Professor Tomas Ganz, MD, PhD, David Geffen School of Medicine, UCLA, discusses his discovery of hepcidin as the body’s master regulator of iron and its therapeutic potential across a range of hematological conditions.

Patient resources

Organizations such as MDS UK Patient Support group, AAMDS and the MDS Foundation offer a wide variety of materials in English language.

Further international organizations can be found at: